Washington, DC — An ad hoc panel of the National Academies of Sciences, Engineering, and Medicine has issued a groundbreaking consensus report focused on advancing data collection on sexual orientation, gender identity (SOGI), and sex, including variations in sex characteristics. The report synthesizes existing research, provides detailed recommendations about how to ask these questions, outlines key principles for advancing inclusion for lesbian, gay, bisexual, transgender, and intersex (LGBTQI) people, and articulates areas for further research. The report emphasizes that improved and standardized data collection is vital for understanding the challenges LGBTQI people face. [GU1] [NG2]
In response to this groundbreaking report, 190[GU3] LGBTQI and allied organizations today released an open letter calling for renewed efforts to advance SOGI and intersex data inclusion on surveys, in administrative data, and in clinical settings. The letter can be accessed here.
Data collected by private research firms suggest that there are over 13 million LGBTQ people in the United States, and the population is growing notably. Scientific estimates suggest as many as 2-5 million Americans were born with intersex traits.[GU4] [GU5]
Said Liz Seaton, Policy Director for the National LGBTQ Task Force: ""Far too few surveys allow people to identify themselves as LGBTQI+ simply because they do not include sexual orientation, gender identity, or sex characteristics questions. The lack of these questions stands in the way of addressing key disparities that LGBTQI+ people experience. We know that data inclusion is a cornerstone of equity, especially for LGBTQI+ people of color, low-income LGBTQI+ people, and transgender and intersex people. It's important to note that transgender people may identify as male, female or gender nonbinary, and also some gender nonbinary folx do not identify as transgender."
To speak with LGBTQI+ experts about data equity and this report, please contact:
Cathy Renna, National LGBTQ Task Force, crenna@thetaskforce.org
Sharita Gruberg, Center for American Progress, sgruberg@americanprogress.org
Naomi Goldberg, Movement Advancement Project, naomi@lgbtmap.org
Alesdair Ittelson, interACT, ittelson@interactadvocates.org
Aaron Ridings, GLSEN, aaron.ridings@glsen.org
Scout, National LGBT Cancer Network, scout@cancer-network.org
